A Fibro Warrior's Honest Feedback

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                                                         7 Months on LDN



Hello dear readers and fellow warriors 



Today I want to share my honest experience after 7 months on LDN (Low Dose Naltrexone) for fibromyalgia. I’m currently on 2mg, and while I’m also on a variety of other medications to manage my symptoms (a story for another day), this post is just about my journey with LDN.



Let me start by saying this: it’s not easy to explain how it’s going—because “better” is such a loaded word when you live with chronic illness.



At first, I wasn’t even sure if it was doing anything. With fibromyalgia, it’s hard to tell when something is helping or when the symptoms are just going through one of their unpredictable cycles. But like always, I kept track. I take notes for my rheumatologist, making sure I report anything that changes—even if it’s something I can’t quite put into words.



But I’ll try. So here it is—the good and the not-so-good of my LDN experience so far.


Positives

Headaches are less constant:

Before LDN, I had headaches almost every single day. Now? Not so much. That constant 24/7 pressure has finally eased a bit.

A boost of energy… sometimes:

This one is strange. I get bursts of energy—real energy—and I can even get cleaning done (which always frustrates me when I can’t). That small window where I feel “normal” again, even briefly, is priceless.

Mental clarity has improved slightly:

I’ve noticed I can concentrate for longer and even keep up with conversations better. It may not sound like much, but when your brain is constantly foggy, those moments of clarity feel like a blessing.

Slight improvement in sweating:

Sweating has been a big issue for me, and while it’s still there, it’s a little less intense. Night sweats still come and go, but during the day, it’s eased up somewhat—even in cold weather.

Weight loss (neutral):

I’m losing weight, and while I’m not sure if that’s a good or bad thing for me personally, it’s definitely something I’ve noticed on LDN.



The Not-So-Great Stuff

Flu makes everything worse:

If I get the flu or any kind of infection, LDN seems to magnify the symptoms. It feels like gambling with your health—some days it supports me, other days it knocks me flat.

Sudden energy crashes:

One minute I have a bit of energy… then bam—completely drained by 10am. Like someone pulled the plug. It’s frustrating because it tricks me into thinking I can handle more, then hits hard with a flare.

Strange sleep and blood pressure dips:

I usually have low blood pressure (109/60), but at night it can suddenly drop to 90/54. Sometimes, I’m so exhausted I just fall asleep without even realizing it—not like normal sleep, more like passing out. It feels like a magnet is pulling me down and I have to fight my brain just to stay awake. Even salty foods don’t help during these moments.

Night sweats persist:

While daytime sweating has eased up a bit, night sweats still come out of nowhere, drenching me even when the room is cold. It’s draining and uncomfortable.

Mental fatigue remains:

My mind always wants to do more—but my body doesn’t allow it. The mental drain is still strong, even though I can stay in a conversation longer. It’s like my brain is stuck in a constant tug-of-war with my body.


So, after 7 months on LDN, I’d say my experience is mixed but cautiously hopeful. It’s not a miracle pill—but it’s not a total miss either. It’s a complex medication for a complex illness, and what works for one warrior might not work the same for another.



There are good days, small wins, and moments where I feel like I’m getting some of me back. But there are also rough patches—and a constant balancing act of managing side effects, symptoms, and life.



For anyone considering LDN: keep a journal, track how you feel, and speak openly with your doctor. Fibro is unpredictable, and so is our response to treatment.



But remember: you’re not alone. And just like every warrior in this battle, you deserve answers, support, and some days of peace.



Thanks for reading. If you’re on LDN or considering it, I’d love to hear your experience in the comments.

With gentle hugs and strength,

A fellow warrior



https://x.com/FlareflourishF  

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